Break the silence on Parkinson's symptoms

Ryan Reynolds at round table listening to someone living with Parkinson's share his story

Find out why people can have trouble speaking up about these non-motor symptoms and the steps they can take to discuss with their loved ones and doctor

When you’re experiencing Parkinson’s-related hallucinations and delusions, simply saying the words out loud to your family members or your doctor can feel intimidating. However, it’s essential to embrace open dialogue about Parkinson’s-related hallucinations and delusions, especially during visits with your doctor.

~50% of people living with Parkinson’s are affected by these symptoms over the course of their disease. Up to 90% do not proactively talk about them with their doctor.

Symptoms of hallucinations and delusions, such as seeing things that aren’t there or believing things that aren’t true, can be frightening and confusing, but they can be a part of Parkinson’s disease and nothing to be ashamed of. They’re not a sign of weakness or even “losing touch with reality.” However, symptoms can worsen over time. Stay ahead of it by keeping family members in the loop and talking openly with your doctor.

3 steps to help you take action

Educate yourself and your loved ones that hallucinations and delusions can be part of living with Parkinson’s. This can build compassion and makes managing these symptoms as a team so much easier.

How do I talk to my loved ones?

Listen as Ryan and others at a roundtable discussion open up about his experience as a care partner and pick up some real-world advice on how to talk about these tough symptoms with your own family.

Illustration of user engaging with the screener tool online

Have you taken the 4-question screener yet?

Find out if you're experiencing Parkinson's-related hallucinations and delusions by answering 4 questions in this validated, self-administered screener.

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Collage of images including Ryan Reynolds with his family, and someone living with Parkinson’s and his wife

Talking openly can help make difficult conversations feel more comfortable over time.

When you make these chats a normal part of everyday life, it can become easier for you and your family to speak honestly and often.

Ready to talk with your family?

This guide offers insights and practical advice tailored specifically for care partners and other members of the family.

Make sure to bring up any hallucinations or delusions during your doctor's visits. Let them know how these symptoms are impacting your daily life and relationships.

How do I talk to my doctor?

Discover why open communication with healthcare providers is critical, with Ryan and Tammy offering tips to start the conversation.

Prepare for your doctor visit

Use this guide to help give your doctor an accurate picture of what you're experiencing.

Ready to learn about a treatment option?

You've taken an important step by learning about Parkinson's-related hallucinations and delusions. Now plan your next move by exploring a possible treatment option. Remember, only your doctor can determine if a treatment option is right for you.

Learn About Treatment